{"id":21541,"date":"2023-01-18T15:32:49","date_gmt":"2023-01-18T15:32:49","guid":{"rendered":"https:\/\/jag.se\/opinion\/?p=21541"},"modified":"2023-01-19T08:43:00","modified_gmt":"2023-01-19T08:43:00","slug":"nar-ska-den-roda-mattan-rullas-ut-for-alla-som-ar-i-akut-behov-av-personlig-assistans","status":"publish","type":"post","link":"https:\/\/jag.se\/opinion\/nar-ska-den-roda-mattan-rullas-ut-for-alla-som-ar-i-akut-behov-av-personlig-assistans\/","title":{"rendered":"N\u00e4r ska den r\u00f6da mattan rullas ut f\u00f6r ALLA som \u00e4r i akut behov av personlig assistans?"},"content":{"rendered":"\n

\u201dALS \u00e4r en fruktansv\u00e4rd sjukdom \u2013 och byr\u00e5kratin g\u00f6r den v\u00e4rre\u201d skrev Hanne Kj\u00f6ller p\u00e5 DN:s ledarsida f\u00f6r en tid sedan. Sen f\u00f6ljer en beskrivning av hur en ALS-sjuk person slussas runt i byr\u00e5kratilabyrinten mellan bist\u00e5ndshandl\u00e4ggare p\u00e5 kommunen och F\u00f6rs\u00e4kringskassan och hur olika insatser som hemtj\u00e4nst och personlig assistans pr\u00f6vas och avsl\u00e5s under att antal m\u00e5nader medan situationen blir mer och mer desperat f\u00f6r den drabbade. Artikeln avslutas med en efterlysning om ett snabbsp\u00e5r f\u00f6r beslut om hj\u00e4lpinsats f\u00f6r den som f\u00e5tt en ALS-diagnos eftersom sjukdomen ofta har ett relativt hastigt f\u00f6rlopp. Hanne Kj\u00f6ller forts\u00e4tter ocks\u00e5 p\u00e5 samma tema i TV4s Nyhetsmorgon.<\/p>\n\n\n\n

Och Riksf\u00f6reningen JAGs medlemmar kan bara nicka igenk\u00e4nnande och unisont inst\u00e4mma i hur ov\u00e4rdigt och inhumant det \u00e4r att p\u00e5 grund av byr\u00e5krati och l\u00e5nga handl\u00e4ggningstider bli tvungen att v\u00e4nta p\u00e5 sin r\u00e4tt till lagstadgat st\u00f6d. Fast f\u00f6r oss med sv\u00e5ra, varaktiga och omfattande funktionsneds\u00e4ttningar handlar det m\u00e5nga g\u00e5nger om en kamp under en hel livstid.<\/p>\n\n\n\n

Det \u00e4r n\u00e4mligen s\u00e5 att den problematik som beskrivs i ledarartikeln inte bara g\u00e4ller ALS-sjuka personer. Det g\u00e4ller ocks\u00e5 oss som lever med sv\u00e5ra, varaktiga, fysiska och intellektuella funktionsneds\u00e4ttningar och som precis som m\u00e4nniskor drabbade av ALS \u00e4r helt beroende av en annan m\u00e4nniskas st\u00f6d f\u00f6r att kunna \u00e4ta, sk\u00f6ta sin hygien, kl\u00e4 p\u00e5 sig, kommunicera, ja, leva ett v\u00e4rdigt liv helt enkelt.<\/p>\n\n\n\n

Det Hanne Kj\u00f6ller beskriver \u00e4r \u00e4ven v\u00e5r vardag. Vi drabbas ocks\u00e5 mycket h\u00e5rt n\u00e4r kommuner duckar \u00e4ven f\u00f6r v\u00e5ra akuta behov. Det finns otaliga fall d\u00e4r personer i v\u00e4ntan p\u00e5 beslut fr\u00e5n F\u00f6rs\u00e4kringskassan eller kommun avlidit, kommit till skada eller vars anh\u00f6riga drabbats av utmattning och sjukskrivning eftersom situationen blivit oh\u00e5llbar innan r\u00e4tt insats beviljats och kommit p\u00e5 plats.<\/p>\n\n\n\n

Hanne Kj\u00f6ller, det gl\u00e4der oss att vi tycker lika. Att m\u00e4nniskor inte ska hanteras efter en och samma modell. Det \u00e4r just d\u00e4rf\u00f6r som assistansen passar s\u00e5 v\u00e4l in i det h\u00e4r sammanhanget, den \u00e4r individanpassad. Och s\u00e5 det d\u00e4r med fusket. Vi tycker ocks\u00e5 att det \u00e4r f\u00f6rkastligt, orsakar enorma skador och problem f\u00f6r oss med de st\u00f6rsta behoven av assistans. <\/p>\n\n\n\n

S\u00e5 vi, och s\u00e4kert m\u00e5nga andra assistansber\u00e4ttigade i Sverige, undrar precis som Hanne Kj\u00f6ller, n\u00e4r ska den r\u00f6da mattan rullas ut f\u00f6r ALLA som \u00e4r i akut behov av och har r\u00e4tt till personlig assistans eller andra kommunala insatser inom ramen f\u00f6r LSS?<\/p>\n\n\n\n

Magnus And\u00e9n, ordf\u00f6rande Riksf\u00f6reningen JAG, genom god man Cecilia Blanck
Anna S\u00f6derberg, styrelseledamot, Riksf\u00f6reningen JAG, genom god man \u00c5sa Emtelin<\/p>\n\n\n\n

\"\"
Magnus And\u00e9n, ordf\u00f6rande, Riksf\u00f6reningen JAG<\/figcaption><\/figure>\n\n\n\n
\"\"
Anna S\u00f6derberg, styrelseledamot, Riksf\u00f6reningen JAG<\/figcaption><\/figure>\n","protected":false},"excerpt":{"rendered":"

\u201dALS \u00e4r en fruktansv\u00e4rd sjukdom \u2013 och byr\u00e5kratin g\u00f6r den v\u00e4rre\u201d skrev Hanne Kj\u00f6ller p\u00e5 DN:s ledarsida f\u00f6r en tid sedan. Sen f\u00f6ljer en beskrivning av hur en ALS-sjuk person slussas runt i byr\u00e5kratilabyrinten mellan bist\u00e5ndshandl\u00e4ggare p\u00e5 kommunen och F\u00f6rs\u00e4kringskassan och hur olika insatser som hemtj\u00e4nst och personlig assistans pr\u00f6vas och avsl\u00e5s under att antal<\/p>\n","protected":false},"author":9,"featured_media":2320,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-21541","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized"],"acf":[],"yoast_head":"\nN\u00e4r ska den r\u00f6da mattan rullas ut f\u00f6r ALLA som \u00e4r i akut behov av personlig assistans? - JAG Opinion<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/jag.se\/opinion\/nar-ska-den-roda-mattan-rullas-ut-for-alla-som-ar-i-akut-behov-av-personlig-assistans\/\" \/>\n<meta property=\"og:locale\" content=\"sv_SE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"N\u00e4r ska den r\u00f6da mattan rullas ut f\u00f6r ALLA som \u00e4r i akut behov av personlig assistans? - JAG Opinion\" \/>\n<meta property=\"og:description\" content=\"\u201dALS \u00e4r en fruktansv\u00e4rd sjukdom \u2013 och byr\u00e5kratin g\u00f6r den v\u00e4rre\u201d skrev Hanne Kj\u00f6ller p\u00e5 DN:s ledarsida f\u00f6r en tid sedan. 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